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Posts tagged "Disability Awareness"

Meet Vine

“This is Vine! He was born with a very rare condition called Cloacal Exstrophy. He is 1 in 400,000! He has had 9 surgeries in his 7 years of life and will have many many more until he’s about 18 or 19 years old. Despite his disability, Vine gets 👏🏻the👏🏻job👏🏻done. He doesn’t let anything get in his way and figures out how to do pretty much anything his friends can do. He sings at the top of his lungs, rolls down any ramp he can find and his Madsen bike makes him feel like he’s flying!!! You can see more of Vine at @vine_loves_life”

Meet Cortland

Meet Cortland


“This is Cortland. A mega strong 4 year old with the brightest heart around. His battle with epilepsy, hydrocephalus, and a chromosomal abnormality called 1p36 deletion syndrome has left him with a trach and some disabilities but it will never stop him from living his best life. He loves to eat, laugh, and wrestle with Daddy and sister on a daily basis. He is our constant reminder so grateful for the smallest things in life and to always cherish what we have. We can all learn a lesson from Cortland to never stop fighting the good fight. We are so thankful to be part of this Madsen family and can’t wait for this 100 degree weather to kick rocks so we can enjoy fun filled rides again!” - Whitney Webb-O'Connor

  

Meet Jake

Meet Jake

“This is my warrior! My rock star🤘🏼! Jake is now 17! He is nonverbal with Autism, Trigeminal Neuralgia and Hydrocephalus! Even though Jake is considered nonverbal, he communicates using his ipad to speak for him! It’s pretty amazing to watch!

Despite every challenge Jake has ever gone through he always comes out smiling...Even after 6 brain surgeries!!!

Jake is our gentle giant. He is very affectionate and I’m gonna brag a bit but, he loves his Mama.❤️ He’s always playing with my hair and giving me kisses! Some of Jake’s favorites are watching YouTube videos of Bear in The Big Blue House, music, swimming, chicken nuggets, french fries and wreaking havoc! He’s a mischievous kid for sure and thinks he’s rather funny!! LOL! He also loves going for car rides and taking pictures of houses with his ipad!

When we got our Madsen aka “Maddie” it opened up a whole new world for us as a family! To be able to bike and be outside in the sunshine and fresh air has brought us so much joy and freedom. To see his face light up on his first ride made my cheeks hurt from smiling so much!

Last summer Jake had his sixth surgery and was unable to do much of anything. He was not in a good spot as we say in our autism world... physically or mentally.

Through his journey he has and will continue to touch more lives than I ever will in my lifetime. Now I get to look at my son and his journey with such gratitude that he can finally “Enjoy The Ride”

His proud Mama-
Tammy”